Welcome to SoyouhaveFND.org.  A website for those of us living with FND, by someone who actually has it! Let's begin with a few disclosures;

I am providing information on this website as a patient! ALWAYS speak to your most trusted healthcare provider regarding your care, take what you read here with a grain of salt and be a critical thinker !! I will be posting/sharing ideas and symptom management tips from other FND'ers here. Since this illness carries a variety of symptoms, no two person's experience with the illness will be the same, therefore no two persons will get the same results from treatments.  Also, I suffer almost daily from "Brain Fog" and am still trying to continue working, managing a household etc. I'm not a professional writer, and this website is something I work on when my symptoms/energy allows. Please forgive me if the blogs don't come out on a regular basis. I am, like all of you FND warriors out there, doing my best.   I hope you enjoy the content I provide, and find some solace in the fact that none of us is alone on this journey.  

Speaking of not being alone, there are some fantastic YouTube videos posted by FND warriors about their experience, and I encourage you to check them out. They're also a great resource to share with loved ones to give them a different perspective on the FND journey.  I have sent my hubby a few video's to watch to help him understand what it's like to live  with this illness.  Hearing about the more difficult aspects of FND can sometimes be taken better when a stranger is telling the story, instead of those we're closest to.  If you're seeking more formal information on FND 

(from the professionals) here are a couple of great resource websites; 

FNDHope.org

Neurosymptoms.org

Those pages are informative, helpful and "clean".   What I'm here to offer is an insiders point of view,  with a ton of honesty, real life tools that help, a few swear words, and a dash of humor. Please don't read my webpage out loud with the "littles" around, just in case there are a few %$#$% words.  Sometimes, this illness can take us to a dark place, and those topics may also be not appropriate for tiny ears.  

I've  been living with this diagnosis since 2019 (but having symptoms since 2015.) FND has taught me a number of things:

1. FND is a difficult illness to diagnose. (NO IT IS NOT  A MENTAL ILLNESS, although you can have FND and also have a mental illness, or you can JUST have FND)

2. Most people have no idea what it is. (That includes many doctors)

3. Depending on your symptom severity, it can change your life drastically. (We're talking full on disability here...)

4. It requires the same kind of supportive care, and commitment to your health as any other illness. 

5. You have to be your own advocate, and be fully committed to managing your symptoms in what ever ways you can.

6. You can recover from this illness, or you can regain some of what you lost, or you can go into periods of remission followed by periods of symptom activation, OR you can have no change at all. It really is a roll of the shittiest dice ever. 

Let's get into it!